Caregivers are faced with impossible choices
In South Sudan, caregivers are often forced to make impossible choices due to lack of access to treatment when a loved one struggles with mental health issues. Many lock their family members away out of fear of the stigma and the violence it might provoke. In extreme cases, they even resort to chaining them. Individuals suffering from mental illnesses are left to languish by society more broadly. Instead of receiving care, they are often confined to prisons or other unsuitable environments, worsening their condition and deepening their suffering, due to inadequate resources, a lack of infrastructure, and no trained mental health professionals.
“With limited infrastructure, some patients take up to four days just to reach the hospital. So, when you have a mental health condition, people don't really take care of you as they do for others, and the patients who make it to the hospital do not come back for follow-up,” Kagomba adds.
Untreated mental health conditions may lead to long-term harm, from deteriorating physical health—affecting not only individuals but entire generations.
The significant gap in mental health treatment means individuals lacking care are likely to struggle in their communities, which can further entrench them and their families in poverty. Limited participation in community activities and restricted employment opportunities diminish their quality of life. This situation may also lead to higher rates of teenage pregnancy and domestic violence. Untreated mental health conditions can also result in higher mortality rates.
To break the cycle of neglect, mental healthcare must be integrated into the broader healthcare system, so that people of South Sudan can begin to heal from the deeper scars that displacement and poverty have left behind. Without this change, families like Mary’s and Nyayong’s will continue to struggle, with the hope for recovery always out of reach.